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Sunday, May 5, 2013

Just trying to process everything

What I want to do is lay everything out on paper (or the blog) so I can clearly articulate everything from the last week. However, my head is spinning a bit.  I need to make some pro and con lists and lists of what is agreed upon with the multiple specialist and what is different. It will all have to wait until I feel up to it.
In a gist I have Dr. Hodul from Moffitt telling me to go live my life and monitor closely, Dr. Sugarbaker telling me to be monitored closely, Dr. Bartlett teling me to be monitored closely, Dr. Sardi telling me he would at least do a lap if not go for the curative HIPEC and I spoke with a GYN oncologist out in California ( he is a cousin of a family friend) and after telling him my situation he unofficially recommended HIPEC.  It is SO tricky because on scans and through blood work I have no signs of disease HOWEVER when I was opened up in December Dr. Hodul did see 1-2 mm deposits of mucin in my pelvis and on my mesentery which is technically signs of disease, even though it was acellular.  The chance of the disease progressing is very high, even though it could take years, it is highly likely to progresss HOWEVER it isn't guaranteed that it will for sure progress, meaning it may never change. I am healthy, I eat super clean.... as close to an anti cancer diet as possible and I exercise, don't smoke, etc.  BUT how do I choose.... it would be MUCH easier to get everything before the disease progressed so the aggressive thing to do is surgery now.  BUT I only have one dr officially telling me this is what I should do.  I'm trying to figure out if I can live and wait. I just wish I had a crystal ball and could see what I should do.  I am so young.  32.  I have a 2 year old and a 5 year old.  I have a husband and family and friends that want me around for a while and I want to live to be a really old lady!! All the doctors gave me an excellent progosis; even with waiting and watching.  Sometimes (rarely) it is nice and easy to pretend that I'm all good.  But most of the time, somewhere in my mind I am wondering if I'm ok.

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