Jenesa's Journey

Hi.  I'm still here, chugging away. Life is good.  Busy, but good.  I got to ride out tropical storm Andrea  at home today with the kids.   The media alway scares me about the impending doom of whatever storm is here and then when it comes through it's not nearly as bad as expected. There were some pretty impressive winds and a lot of rain so I was happy not to be out driving.

Yesterday Sean and I met with my local oncologist.  We felt like we needed to bring him up to speed with the appointments we had with Dr. Bartlett and Dr. Sardi.  I can't begin to describe what a unique and frustrating situation I have on my hands.  It is truly medically unheard of to have two different cancerous tumors in the appendix so NO ONE believes me when I tell them, including my local oncologist. He still is doubting that I really had a mucinous neoplasm. This is after 3 different pathology departments reviewed my pathology slides, two of which are from cancer institues and all 3 agree that there were two seperate, malignant tumors.  I wish he was right but I don't believe he is.  I've met face to face with two mucinous specialist, sent my files to 2 other mucinous specialist and all 4 confirm that yes I have a very rare situation on my hands.  Yes there were two different tumors.  Anyway, he is willing to run the tests that the specialist say I need on the schedule they are recommending so I will have my tumor marker blood work 3 months post scans (so august 1st-ish) and then scans the end of October. It is really hard to be in a situation where not much is known and there is no standard protocol.  Again, the good news is I've been given an excellent prognosis and I truly believe and know I will live a long life.  I am healthier than I have ever been, I'm feeling good and I am optimistic that there are no living cancer cells anywhere in my body.

So, what have we been up to?  We had a wonderful Memorial Day weekend.  We were in Orlando and had such a fun family weekend by the pool and finished off with an amazing fireworks display.  Ava lost her first tooth on her last day of VPK.  I was excited to welcome the tooth fairy with her. Such fun. She's excited for her camps and we are hoping to have a family vacation at some point this summer.  Liam is doing well too.  He's growing like a weed and he's blossoming so much.  He's quite the talker and has a great personality.  Sean and I are headed to Atlantis later this summer.  Neither of us have been and we are really looking forward to a relaxing getaway.  That's it for now. I should hear back from Dr. Loggie soon. (the last specialist I sent my stuff to)  I'll update with their official recommendation.